Researching Health Together: Engaging Patients and Stakeholders, From Topic Identification to Policy

Author by : Emily B. Zimmerman
Languange Used : en
Release Date : 2020-03-02
Publisher by : SAGE Publications

ISBN :

Description : The challenges of addressing health disparities, the ethical imperative to include stakeholders in research, and the slow translation of research evidence into practice are all driving a movement towards more community-based and participatory approaches to research. Researching Health Together brings together authors who have produced innovative methods or implemented projects focused on different stages of the research process, from question development to evaluation and translation. Editor Emily B. Zimmerman gathers exemplary new methods and projects into one place for the benefit of students designing research projects and proposals, those learning stakeholder-engaged methods, and those involved in implementing and funding stakeholder-engaged projects. Each chapter addresses: how engagement was conceptualized, organized, and implemented; how engagement was evaluated; impacts on processes and outcomes of the project; and facilitators, barriers, and lessons learned. The book serves as a core textbook for courses in community-based health research at the graduate level. "[This book] focuses only on translational health research and expands beyond CBPR to include practice-based research networks (PBRN) and stakeholder-engaged research within health systems.... The overall strengths of this book are its in-depth and almost inspirational focus on CBPR methodology, be those actual geographic or cultural communities or disease-based communities.... Researching Health Together, in its first edition, is a necessary bridge from the theory of participatory health research to its application across research environments." - Journal of Participatory Research Methods...

Author by : Debra Lerner
Languange Used : en
Release Date : 2022-02-27
Publisher by : Springer Nature

ISBN :

Description : Despite the large U.S. investment in health science, and the vast and growing body of peer-reviewed research findings it has produced, a compelling body of evidence suggests that research too often has been slow, inefficient, and fallen short of desired impacts on health. A key question is how research might be changed to be more innovative, less wasteful, and more responsive to unmet health needs. One emerging response within clinical and translational science is to advance an approach that attempts to close the gap between research scientists and key stakeholders; the individuals and groups responsible for or affected by health-related decisions. Broadly engaged team science promises to support this aim by transforming the gold standard, multi-disciplinary team science, to include key stakeholders in activities across the research spectrum. These new roles and responsibilities range from generating research questions to implementing research projects, to aiding in the translation of discoveries from the laboratory to the community. A transition to broadly engaged team science reflects the idea that inclusivity and a diversity of perspectives are necessary to achieving progress in addressing complex health issues while representing a new benchmark for ethical research practice. This is one of the first collections of papers describing how clinical and translational science researchers are defining and implementing new research practices, and the successes and challenges involved. This book represents a first and critical step towards organizing knowledge of broadly engaged team science and advancing the development of evidence-based practices. Written in an accessible style, this book is intended to highlight the breadth of broadly engaged team science within one community, motivate researchers and stakeholders to build inclusive teams, bring rigor to often informal stakeholder engagement research practices and encourage people to think more broadly about the development of scientific knowledge. It includes examples of multi-disciplinary, broadly engaged team science projects, the perspectives of academic leaders about the changes needed to encourage scientists to conduct broadly engaged team science, and a resource directory....

Author by : Melody S. Goodman
Languange Used : en
Release Date : 2017-11-01
Publisher by : CRC Press

ISBN :

Description : Translating research into practice involves creating interventions that are relevant to improving the lives of a target population. Community engaged research has emerged as an evidence-based approach to better address the complex issues that affect the health of marginalized populations. Written by leading community-engaged researchers across disciplines, each chapter covers a different topic with comprehensive guides for start-to-finish planning and execution. The book provides a training curriculum that supports a common vision among stakeholders as well as a survey of methods based on core MPH curriculum. Practical appendices and homework samples can be found online. Public Health Research Methods for Partnerships and Practice will appeal to researchers and practitioners in community or government sectors interested in conducting community-engaged work....

Author by : Emily E. Anderson
Languange Used : en
Release Date : 2023-10-31
Publisher by : Springer Nature

ISBN :

Description : This book provides in-depth analyses of a wide range of topics surrounding ethical issues in community and patient stakeholder–engaged health research, and highlights where consensus exists, is emerging, or remains elusive. Topics in this book cover the history of stakeholder engagement in health research; how codes of ethics and regulations have (or have not) addressed stakeholder engagement; how to promote equitable collaboration; the ethical perspectives of different stakeholders; and the unique challenges posed by stakeholder- engaged research to the protection of human research participants and the research ethics review process. The book includes discussion of unique issues that arise in stakeholder engagement relevant to different populations, settings, and research designs. This book is relevant for anyone with a role or interest in stakeholder-engaged research, including patient and community research partners; academic researchers; research ethics scholars and educators; and funders....

Author by :
Languange Used : en
Release Date : 2002
Publisher by :

ISBN :

Description : ...

Author by : Andrew Sixsmith
Languange Used : en
Release Date : 2020-12-22
Publisher by : Springer Nature

ISBN :

Description : This book provides researchers with a straightforward and accessible guide for carrying out research that will help them to combine good science with real-world impact. The format of this book is simple: concise chapters on key topics, examples and case studies, written in plain language that will guide researchers through the process of research-driven innovation. The book draws on the editors’ experience in leading the Age-Well Network of Excellence. The aim of Age-Well is to drive innovation in the area of technology and aging. Researchers often lack the knowledge and abilities to commercialize or mobilize the outcomes of their research. Moreover, there is a lack of training and education resources suitable for the wide range of disciplines and experience that are becoming more typical. The book emphasizes the practicalities of “how to” undertake the kinds of activities that researchers should be engaging in if they are serious about achieving impact. Overall, this book will guide researchers through the process of research-driven innovation....

Author by : Kayla Mary Atkey
Languange Used : en
Release Date : 2014
Publisher by :

ISBN :

Description : Food security is said to exist "when all people, at all times, have physical and economic access to sufficient, safe, and nutritious food that meets their dietary needs and food preferences for an active and healthy life" (Food and Agricultural Organization, 2008, p. 1). In the last several decades, challenges related to the achievement of food security in Canada have had a significant impact on public health. To address such challenges, comprehensive approaches are required, which include action at the public policy level. In this study, I worked with stakeholders from Growing Food Security in Alberta's policy working group to develop a public policy advocacy project to promote food security in Alberta. I also explored the experience of this group as it engaged in this process. This study was informed by principles of community-based participatory research (CBPR) and a focused ethnographic approach. In total, 14 stakeholders from across Alberta participated in the study. Data generation included semi-structured interviews, participant observation, and document review. Data analysis took two forms. First, I arranged data chronologically to document and describe the advocacy project. Second, I conducted a thematic analysis to explore stakeholders' engagement experiences. Development of the advocacy project involved three phases carried out between November 2012 and July 2013: (a) an initial workshop to begin the identification of our advocacy focus; (b) monthly meetings to develop the advocacy project, and; (c) a final workshop to summarize outcomes and develop a plan for project sustainability. During this process, the group engaged in advocacy steps informed by CBPR approaches to policy advocacy, including issue identification, determining our advocacy focus, research and information gathering, developing our position, strategic analysis, and organizing for action (Themba-Nixon, 2010). The result of the advocacy project was the beginning of a campaign calling on the Alberta government to develop a Universal School Food Strategy. Through the exploration of stakeholders' experiences, I identified four main themes. The first theme explores the research project as a positive and open space to contribute, the second theme focuses on diversity and achieving common ground, the third theme describes the group's sense of confidence and capacity throughout the project and, finally, the fourth theme highlights the group's experience of uncertainty. Contextual factors identified include the meeting mode, time, and meeting organization. I end the study with a critical reflection on our advocacy focus, as well as highlights and lessons learnt from the advocacy project. I also situate the exploration of stakeholders' experiences in relation to the literature. Last, I provide recommendations for future research and action. Taken together, findings and recommendations from this study may help to inform advocacy work to promote food security in other Canadian jurisdictions....